Since the diagnosis of my multiple chronic illnesses, the specialists sent me in lots of different directions to other practitioners that could give me the tools to learn
management strategies for daily life with chronic illness.
The conditions I have been diagnosed with include:
Hypermobile Ehlers Danlos Syndrome (hEDS)
Postural Orthostatic Tachychardia Syndrome (PoTS)
Mast Cell Activation Syndrome (MCAS), Allergies, Asthma, Eczema, Psoriasis
CFS/ME or Chronic Fatigue Syndrome
Atlantoaxial Instability (AAI / Neck Instability)
Gastroparesis (Delayed Gastric Emptying)
IBS (Irritable Bowel Syndrome)
Amongst these conditions there are multiple associated symptoms. For all approaches, therapies, medications everyone is different. I studied an entire Psychology BSc degree and this was the conclusion of almost every essay;
There are so many environmental, societal, innate factors that differentiate people and it can
never be “one size or treatment fits all!”
So I emphasise the need for an INDIVIDUALISED THERAPY for everyone.
Across this section, I am going to share the tips and tools that I use to manage my various symptoms, and break down what usually helps with pain relief for me for each symptom.
Because the symptoms of many chronic illnesses are overlapping, these resources are aimed at helping anyone with a chronic illness that experiences similar symptoms.
HOWEVER I want to be clear that this is not medical advice and what works for me, may not work for you. You should alwasy check with a medical practitioner as to whether any new strategies are right for you to try out.
The concepts that I am sharing should enable you to personalise and create your own versions of the strategies that I use, that are tailored to YOU. Explore this section by tapping the buttons below:
Discover the importance of creating a flare up toolkit consisting of all of the strategies that can help you during a symptom flare up
In addition to creating a general flare up toolkit, noting down the symptom specific strategies can be a hugely useful tool to incorporate in daily management of your chronic illness
Have you heard of the Step Ladder Strategy for managing chronic illness?
Discover more about how it could help with daily management on this page.
Pillows are such an important strategy in my flare up toolkit that I've dedicated a page to demonstrate how they help me, what makes them beneficial and how they could help with your symptoms
I've more recently been diagnosed with this condition and this page is the useful information that has been shared with me by other people in the community with this condition. You can find the strategies that typically help people with gastroparesis in this section
To gain independence on a daily basis, being able to prepare food and drink in the kitchen is important. But a lot of the time, this isn't very accessible and simply preparing a meal can be a huge task. I've come up with strategies to make my kitchen more accessible, and these strategies have helped me enormously to be more independent.