A Guide for Diagnosis with Chronic Illness

On this page is a guide of the things that I wish I knew when I was diagnosed with chronic illness. You can this to refer to upon diagnosis or share with others who have been recently diagnosed.

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1. There are stages of grief that you may experience on your path to acceptance of your chronic illness;

  • they're not necessarily linear, will take different times for everyone and may resurface after acceptance

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2. Allow yourself to process ALL emotions (good and bad)

try not to feel guilty for feeling how you feel or suppress emotions

3. Research research research about your conditions

- it took me months to fully understand mine and sometimes I still learn new things about them

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4. Connect with other spoonies (people with chronic illness), using social media or joining support groups

5. When you’re still coming to terms with the condition, explaining it to new people may be challenging at first;

  • so prepare a little document outlining what they are and how they affect you and what they can do to support you

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7. Actively search for adjustments and accommodations to make life easier

  • you may want to look into mobility aids or supports but also household gadgets, routine and general lifestyle changes that can help you cope better on a daily basis through symptoms and flare ups

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6. Look into strategies for daily management that can help you

  • begin trialling and be patient as everyone has different strategies that will work for them

  • collate them into a flare up toolkit to refer to when you need

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Bookmark this page to refer to. Is there anything you would add?

Let me know via the button below and I'll be sure to update this page!

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Chronic illness insights, tips & resources